Monday, September 1, 2008

Elder Care Stresses and 10 Suggestions for Coping

Stress is the constant companion of those who care for their aging parent(s). There's much that's been written about not forgetting to take care of yourself when taking care of others. I'm not going to repeat it here, but I do want to look beyond the usual advice. I'm not a psychologist or psychiatrist, but even so I think telling someone "be sure to take care of yourself" is a bit glib. Saying "don't forget to take care of yourself" has become ubiquitous. Those who say it think that they're showing empathy, but personally I find it to be an empty statement that doesn't help.

Consider the word itself. What does "STRESS" actually mean? By definition, "stress" means "to subject to force; to put pressure or strain upon."

When you are responsible for your parent's well-being the pressure is continuous and the resulting strain is immense. If you are being continuously subjected to pressure, squeezed in a vise, then the standard of what it means to care for yourself has to change. We all know that we have to take care of ourselves. The question is how best to do so? In my experience, the things that are most restorative are ones that take the lid off the pressure cooker for more than just an hour. They're substantive and long-term. They affect you deeply and offer a chance to take control, something which is sorely lacking in the caregiver's world.

Here are 10 suggestions, some small and simple, others more complex:
  1. Learn how to speak up for what you need and what you want.
  2. Tell people what's happening with your parents.
  3. Dismiss the notion that you can do it all on your own.
  4. Contact relatives and involve them in the situation.
  5. Know that you'll do everything right and your parent will still get worse.
  6. Accept that it's not humanly possible for you to do everything that could conceivably be done for your parent.
  7. Pick one thing that you want to thoroughly understand or accomplish and delve into it.
  8. Find your center, your core, and listen to what it has to say about yourself and your parent.
  9. Figure out one element of your parent's dignity that has been damaged due to dementia or other infirmities and restore it.
  10. I've said this before in previous posts, and I'll repeat it a lot in the future: Remind yourself every day that you are doing the best you can possibly do.

Every one of these suggestions is a topic of it own. I'll post on each one in the future.

Can you offer more suggestions?

5 comments:

Anonymous said...

Your blog is inspiring and instructive. Thanks for the advice.

Dina said...

Thank you very much for your positive feedback. I'll do my best to keep my posts both inspiring and instructive! In the future I will also bring in posts written by others who have a valuable insight to share. I hope you continue to tune in.

Anonymous said...

Dina,
I love this blog! I am so happy to see families and caregivers having a forum to share information.
Thank you!
Cindy Hasz
Grace Care Management

Dina said...

Thanks Cindy! I know you see both sides of the picture so I welcome your perspective. Come back often.

Anonymous said...

Dear Dina,
Again, I am so happy to see you doing this blog. You and Vivienne are caring for your aging mother with intelligence, compassion and great sensitivity.

That doesn't mean it does not get stressful. Thank you for sharing your wisdom on how to handle the times when you just want to give up.

If raising a child takes a village, helping our aging parents can take several villages!!

I couldn't agree with you more that adult children, family members and all primary caregivers are the true experts. As such they need to be recognized and empowered with information sharing like "Mimi's Place. They also need to be consulted and integrated into the care team by doctors, nurses and other professionals serving the elderly in various care delivery settings.

Especially with eldercare, family advocacy is the only way to ensure the "quality care" everyone deserves but so few receive.

I hope this blog goes all across the nation and becomes a grassroots movement to help families champion the rights of all elders in our communities and nation.

With respect and admiration,

Cindy Hasz
President/CEO
Grace Care Management
San Diego, California
www.gracecaremanagement.com